He may have the whole world in His hands, but He, for sure, has His hands all over me!
October 24, 2014, dawned like almost every other day. I had things to do...errands to run. Among my errands was a trip to the Baylor Breast Imaging Center Rockwall.
Backtracking a bit...my OB-GYN for the last 35 years retired. When I developed yet another breast cyst that needed to be drained, I called a friend of mine to seek a referral. She quickly told me that the doctor she worked for did needle aspirations in his office. This was exactly what I was looking for and he could get me in quickly. Since this cyst was causing me some pain, we booked the appointment and I went in. I REALLY liked this doctor. He was easy going and easy to talk to. An added plus was that he knew my previous doctor. After draining the cyst he asked me when I had gotten my last mammogram. I told him that I had gotten a bit off track since I had been required to go in for a 6 month re-eval of one breast due to the fibrous nature of the tissue. I told him it was probably getting close to time for the next full mammo and assured him that I would check it out, schedule a mammogram if it was time and have the result forwarded to him.
Back to October 24th.....It was a fluke that I remembered this day (a couple of weeks after the aforementioned appointment) so while it was on my mind I made what I thought would be a quick stop at the Imaging Center. When I asked about my last imaging, I was told that it had been 17 months! Yikes! I asked to schedule an appointment as soon as possible...and this is where I know God had His hands all over this. There had been an equipment failure and the center had to cancel all of their appointments the previous day and all of their morning appointments this day in order to have the equipment repaired. It was now in tip-top working order and there would be no patients until the afternoon. The receptionist asked, "Want to do it while you are here?" Heck, yeah! I was in and out in 30 minutes and on my way to getting things done! In all honesty, I actually forgot about having the mammogram. Never gave it another thought...until the following week when I got an early morning phone call from my doctor's office telling me that I needed to go into another of the
Baylor Imaging offices for a follow up "spot magnification." Assured that it was probably nothing, there was still an area that needed to be looked at more closely. I have had to go back before for spot magnifications/compressions because, again, the breast tissue is so dense and fibrous. Again, this was nothing that I even gave a second thought to. I scheduled the follow-up for the North Dallas office on November 3rd and went in for the appointment. Still not concerned, I went by myself. There had been false alarms before, so I never even considered asking my husband to go with me. My first niggle of concern came when the technician taking the spot magnification x-rays asked me to wait while she showed the pictures to the radiologist. This was different than it been before. Then the radiologist came in and said that the doctor wanted to talk to me. Now I was beginning to feel some concern. When the doctor came in he explained the situation to me. I saw the x-rays and could identify their area of concern, but I was still taken aback when he explained that I would need a biopsy of the area of concern. Biopsy? You mean, like, to check for cancer? Yeah. Given the choice between a hospital operating room procedure under general anesthesia and coming back to their offices for the biopsy to be done under local...well, yeah, I chose the lesser of two evils and booked an appointment for one week later at their facility...Monday, Nov. 7th. However, due to "the wrong box being checked on the medical orders" I had to wait another day and went in on Tuesday, Nov. 8th, instead.
It's called a stereotactic core needle biopsy. It isn't fun. It isn't horrific...but it isn't fun. It took about an hour and 15 minutes and the computer guided needle took between 5 and 7 samples. I chose to believe that, like every other time, this would be another false alarm. A side note here...the technician who worked with me, Shalonda, was absolutely the best! Throughout the procedure she rubbed my back, inquired as to how I was holding up, kept me updated as to our progress ("We're about 75% through...") and was focused on making this the least painful and unsettling process possible. After the procedure Ronnie and I enjoyed a delicious meal at the Cheesecake Factory and went on our way. I had some pain, but it was manageable. I was told that the results would take 3 to 7 days. This was Tuesday. On Wednesday I got a call from Karen at the center just checking to see that I was doing okay. I assured her that I was. She startled me when she said that my lab results might be in before the end of the day and, if so, she would call me. If not, I should expect a call on Friday. Again...no concern on my part.
On Friday, November 11, 2014, I was out running errands and Christmas shopping when I got the phone call that took my breath away. It was Karen. My report was back. It was "inconclusive." What? What does that mean? It means that I was diagnosed with "atypical columnar hyperplasia with microcalcifications unable to eliminate DCIS (cancer in situ)." In other words, they could not determine with any degree of certainty whether this was breast cancer or not. However, at best, it was pre-cancerous tissue and I would need to see a breast surgeon for removal of the tissue. Whaaaatt????? This came totally out of left field. Soooo unexpected! Anyway, Karen said she would make me an appointment with a surgeon and call me back. My doctor refers to Dr. Michael Grant and so the appointment was made for Monday, November 24th. Now the waiting game began and this situation was all too real...and a bit scary!
The most difficult thing about this whole episode was having to tell my kids what was going on. I didn't want to cause them any concern or worry and yet I did not want them to hear about this from some other source. So I made the two most difficult phone calls of my life and tried to assure my kids that there was no reason to worry when, in fact, I was struggling with my own feelings and emotions. That done, there was nothing to do but wait and see if Dr. Grant could help me make sense of this whole thing. Waiting. Not my strength. I did, however, come to the realization that "it is what it is and no amount of worry will change anything so just let it go. I am a child of God. He's got this." And that is when I relaxed enough to see that His hand had been on this from the moment I remembered I needed to check on a mammogram date and "just happened" to be able to get an appointment right away. Maybe even before that. Maybe that's why I got the painful cyst that needed medical attention in the first place. Either way, I know that He is in control and knew the outcome of this even before my great, great, great great grandparents were even conceived. Yeah. And with God in control, what do I have to be concerned about? I will just wait, as calmly and patiently as possible, for my appointment with Dr. Grant.
So, I would love to say that I let go of my concerns and passed the time worry-free...but that would be a lie. I will admit that at random times I would be reminded of the issue and would be melancholy as I contemplated the potential outcome. At the same time, I know that I know that I know that God has His hand on my life. I will admit that it put a damper on what should have been a BIG birthday celebration for me as I turned 60. It turned out to be a very low key, barely even noticeable event spent wondering what would transpire for me before the next birthdate rolls around. I admit that I feel cheated. Again...it is what it is.
On Monday, Nov. 17, Dr. Bristow called to make sure I was fully informed on the lab report and recommendations. He said that Dr. Grant will "probably" recommend a 3D Excision Biopsy in which they do a 3D image of the breast to locate the specific area and deaden the tissue to implant needles. Once needles are in place I will be taken to an OR under general anesthesia and the needles will guide Dr. Grant to the area to excise. After that.....?
On Friday, November 21st, I told my dad what was going on. As much as I tried to downplay the situation, I could tell it still upset him. He was still concerned. I assured him that I would keep him in the loop as to what was going on. Even though I did everything I could to downplay the situation, when I left his last words to me were, "Sis, I hope everything with that test turns out okay." Out of the blue. I could tell it was on his mind. What I wouldn't give to make it seem insignificant to him. Hell, I want it to be insignificant to me. It isn't the issue of cancer. It's the not knowing that is beating me up. I have a need to know. Either way is okay. I just NEED to know. I'm sure that God has a lesson for me here. I'm just a slow/resistant learner. What I think I need may or may not be what God thinks I need. Crap!
I met with Dr. Grant and was at once put at ease. First, we showed up 30 minutes early for my appointment. While in the waiting room I noted that Christian music was playing on the speakers. Specifically, it was Steven Curtis Chapman singing "Be Still and Know." By the time I was called back...which was only a few minutes...I was in tears. That was a song I chose for my brother's funeral. Another sign that God was watching. My meeting with Dr. Grant was short and to the point. I would need surgery but it was okay to wait until after our 3 week Florida vacation. Oh, and by the way, there was a second area of concern that showed up on the pre-biopsy films. What?? Yeah. A second area of concern. Oh,yay. We scheduled another diagnostic mammogram for Dec, 23rd and a surgical biopsy for Dec. 29th and we were out the door. Yay! Finally, a doctor that respects the patient's time!
We took our vacation as planned, but it was cut a week short when Ronnie's dad unexpectedly passed away. We left Miami on Friday, 12/12 for a drive straight back to Rockwall...stopping only for sleep. What I hoped would be a little down time before the chaos of my medical issues turned into an even more chaotic time complete with grief. The busyness of trying to pull together all of the details for the viewing and funeral (and my BIL, Keith, had done the actual planning) along with trying to spend time with my dad and participate in his health care plan, cleaning the RV, getting all of the laundry done, planning and shopping for Christmas Eve, finishing stocking shopping...I'm sure you get it. Time flies when you're having fun...and flies even faster when you are on a time deadline.
I went in for yet another mammogram on Dec. 23rd. They wanted to see if they could locate the second area of concern. They could not. The technician told me that they (the medical staff) think that MAYBE it was part of the needle biopsy and is gone. Emphasis on maybe. While I guess I should find it comforting that they could not locate a second area...I do not. I want to know FOR SURE if it is all gone and if it was or was not cancer. I don't want to be left to fret over whether or not my body has turned on me and some rogue cells are in there mutating and trying to kill me. I hate the uncertainty of it all. That will be a topic of discussion for my doctor when next we meet, for certain!
Being the anal OCD human that I am, I filled the day prior to my surgery with a ton of activity. I completed all of my Monday, Tuesday and Wednesday chores so that I could rest post-op. That means I changed and washed the bed linens, I cleaned all three bathrooms, I did all of our laundry except the clothes we had on, I mopped the kitchen floor and I vacuumed the carpet. In addition, I fixed a crockpot soup for lunch, took down my Christmas decorations, unloaded and re-loaded the dishwasher, finished all 4 rustic serving trays that I was in the process of making, completed 2 days of my Bible study, delivered my dad's clean laundry, took my dad's new lift chair to his apartment and put it in place and took down his Christmas decorations. Kept my mind and body busy so as not to dwell and obsess on the pending activities.
Surgery day came a lot earlier in the morning that I would have liked. Didn't sleep well. Kept waking up and checking the clock. When 5:30 finally arrived I was sleeping soundly. Figures. 😒 Anyway...we left home at 6:15 for an 8:00 appt. at Baylor. Got there at 7:00! Absolutely no traffic on the way in...I guess because it is the week between Christmas and New Years. Got there early and they got me registered right away. Why, oh, why do they ban makeup and jewelry? On a day you're not looking forward to you have to go out in public sans any kind of "enhancement!" Seriously, I NEED my makeup. I tend to take on a ghostly appearance without a little facial decoration. And I need my earrings, too. Don't have to have the other stuff, but I really would like to have my earrings! Oh, well, just another hoop to jump through (all the while looking like an mutant albino with crazy hair!).
Let the games begin! The wire placement procedure was relatively easy. Courtney, who performed my diagnostic mammo on 12/23, also performed the xray portion of this mammo. I just love her! So professional, personable and knows her stuff! A call of kudos is in order. The deadening agent used by Dr. Bowie was like an injection of pure fire for about 30 seconds, but after that it was a fairly easy process and finished rather quickly. We literally walked out the back door and across the street to Baylor Surgicare. I know my complaint, considering all things, may seem odd...but it was like a refrigerator in there! I was literally shivering! After checking in, registering and going through the paperwork with not one, but two, staffers, I was escorted to the back to don my "Oh So Fashionable" hospital gown and non-slip socks. From there I was escorted to Recovery Room A to wait for nearly 2 hours for my scheduled surgery. Yes, I said Recovery Room. You start out waiting in a private recovery room where you wait in a recliner. I played on my ipad, read and talked with the hubs until my appointed time. I met with the anesthesiologist and my surgeon before, once again, being escorted to OR 5 for my procedure. I climbed up on the heated table and was covered by 2 heated blankets. My anesthesiologist said, "See you in an hour," and I remember feeling the start of the "buzz" before becoming aware that my nurse was asking what I wanted to drink with my graham crackers. What??? My procedure was over and I was sitting in another recliner. I ate and drank to prove I could and talked to the hubs when he came in. He helped me dress and I hopped into a wheelchair to be wheeled to the car. We stopped at TGI Friday's for some REAL food and then continued home where I changed clothes and spent the remainder of the day resting on the sofa. Dr. Grant called about 6p to check on me and give me further instructions and I added a TON of Pinterest projects to my list of things to do! Lol! No pain associated with the surgery but I did take a pain pill at Dr. Grant's suggestion that it would help me sleep. It didn't. I went to bed at midnight and woke up at 2am...not from any pain or discomfort...just couldn't sleep. I'm sure from the stress.
Tuesday found me swollen and sore. Really sore. I got dressed and we went to the grocery store anyway, but the soreness and the fatigue took their toll on me. An ice pack and the sofa were my new best friends. I'm staying away from the pain pills unless I just have to take them. I feel like they will come in handy with my back pain. A shower on the horizon, I lay down for a nap.
Wednesday, New Year's Eve, was a huge disappointment! I really wanted my biopsy results, but when I called Dr. Grant's office they were closed for the holiday. So another 24 hours of anxiety awaited me. The disappointment was enhanced by the fact that I was so stinkin' sore that I couldn't even stand to have my arm down by my side because it touched the side of my breast and put pressure on the incision area. I HURT! So, when I was up...which wasn't much...I walked around with my arm held at a funky angle making me look like I was auditioning for the part of a zombie on
The Walking Dead!
Thursday was New Year's Day. I had wanted to be secure in the knowledge that I was starting a new year fully knowing what was going on with my body. Yeah. That didn't happen. I made a note that the next morning I was going to call Dr, Grant's office as soon as they opened. I wasn't sure if the results were in, but if they were...I wanted to know!
On Friday, January 2, before I could make my call, I got the phone call that changed everything. Dr. Grant's nurse, Nancy, called with the pathology report. Her first words..."It's not that bad..." which is code for "it's not good." Actually, it was the best of the worst news, the diagnosis is DCIS...ductal carcinoma in situ. Pathology revealed a small focus of non-invasive breast cancer cells. Dr. Grant took a 4 mm area and the margins were clear. Good news there! It was contained! I have an appointment with Dr. Grant on Monday. He will most likely refer me to a radiology oncologist so that I can make an informed decision on whether or not to pursue radiation therapy. Although I have known, in my heart, all along that this was cancer...it was still a blow. All day I struggled in my mind with the fact that I HAVE HAD BREAST CANCER. I AM A CANCER SURVIVOR. I sat in that chair prior to surgery with breast cancer. I entered recovery as a survivor. I have to say...the head games are overwhelming. I was out running errands, alone, and it gave me ample opportunity to examine my feelings and thoughts. I am confused...I am relieved...I am hurt...I am grateful. I know that from the moment that I began this journey, hell, before I even knew there was a journey, that God has been with me. Earlier I made reference to the fact that "God has had His hands all over me." I soooo believe that. I believe that if I was dusted for prints you would find divine fingerprints all over me. That being said...as I was finished with my errands and began my journey home a song came on the radio. It was Stephen Curtis Chapman singing "Fingerprints of God." Wow! Just...wow!!! A line in the song, "Oh, and God's not through, no. In fact, He's just getting started." No doubt about it...God spoke to me. Through that song. At a time when I most needed to hear His voice. He spoke and I heard Him. I have no doubts about that. It wasn't a still, small voice or s burning bush, but it was God speaking to me nonetheless. I feel humbled...honored...privileged. If I had to have breast cancer in order to have that experience, then Thank you, God, for allowing me to have breast cancer. My God chose me in which to work and He spoke His reassurances over me. What a blessing and comfort that is!!!!!
All along I have felt that God is allowing me to make this journey for a purpose. For everything there is a purpose...and I believe that the purpose here is to allow me to be a compassionate listener to others who may be struggling with uncertainty, health issues, cancer...whatever. I have a testimony to God's faithfulness and I have a testimony about trusting God...letting go...knowing that He has plans for me that will cause me to grow and prosper. A testimony to my attitude of "It is what it is and it's in God's very capable hands." I have already had an opportunity to give my testimony of God's faithfulness to a friend who has been faithful to call and check on me and to pray for me. This friend is one of my husband's former co-workers. When he called this week to find out the biopsy results I assured him that I am okay with it. I have faith thwt God has my back on this. He asked, "How do you do that? How do you just let it go and trust that it will all work out?" I was able to share with Him what I believe
God has given me to say. It turns out this friend has recently been diagnosed with a very serious health issue...one that has taken the lives of two of his family members. By the end of our conversation he was agreeing with me that trust is all we have...that all the fretting, worrying and crying doesn't change a thing except the quality of life for you and those you love. Might as well let God handle things.
I have my post-operative appointment with Dr. Grant on Monday, January 5, 2015.
I will know more about my next steps and my treatment plan after that appointment. Till then, "It is what it is" and what "it is" is a God thing. What a relief!
On Monday, January 5, 2015, I kept my appointment with Dr. Grant. Loaded with questions, I reminded my doctor that while he may see this type of situation daily...or at least weekly...it is my first time experience dealing with cancer. I am filled with uncertainty. While I am clinging to Bible verses Jeremiah 29:11, Isaiah 46:10 and Proverbs 3:4-5, I don't consider being naive a calling. My God calls me to calm...not to stupidity, naivity, or meekness (although they do inherit the earth...). I want to be a proactive participant in my healthcare plan. Not just buzzwords anymore, they have significant meaning. Remember, "God's not through, no. In fact, He's just getting started!"